Today Evan had an MRI to get a picture showing the new placement of the grids Dr. Weiner put in yesterday. He couldn't eat because he needs anesthesia with MRI and that was pretty tough because he didn't get brought down for the test until 3:30. That's a long time for a hungry kid to wait to eat!
Evan knew Aria and my mom were on their way up for a visit (thanks Bob and Beth for bringing them up here!) and he was really looking forward to seeing them. When we knew they were close, we told Evan that Aria would be here when he woke up after the MRI. As he awoke, his first words were, "I want Aria". They really do have a special bond. Evan cried when he saw her and then was in really good spirits for the rest of the night. He requested McDonald's for dinner and Aunt Becky (who arrived last night to relieve Uncle Chuck) went running to do Evan's bidding. When she got back he was fast asleep.
The not so great news is that Evan is still having seizures. But the up side is that there is still one more surgery and Dr. Weiner will be able to remove more and hopefully end Evan's seizures once and for all. This is pretty typical with a three-stage surgery so it wasn't a complete surprise, but we were hoping Evan would be done! We should know more tomorrow after Dr. Weiner looks at the MRI and EEG data, but we do know the next surgery will be more involved than just removing grids.
For now I'm just happy Evan is in good spirits and still feel we are on the right track. Seizure eradication, here we come.
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7 comments:
Lisa. Your upbeat attitude is GREAT. Keep it up.
James says, "Still the optimist!" We were talking about the McDonald's runs and figured that would become Aunt Becky's job now that Uncle Chuck has left. I just want Evan to know that Uncle James loves him so much that he would even go to McDonald's to get chicken nuggets and bring them back to the hospital for him if we were there.
You may want to keep a close eye on Aria tomorrow. I expect she'll have something to say about how yesterday's surgery was supposed to stop ALL the seizures. It's a good thing we have her to keep us all in line. I got a good laugh sharing the story about how she fussed at Grandma for taking her out of school.
Will they put the grids back in next week, or is that it?
Do let us know how tomorrow goes.
Love to all of you,
Mary
It is so amazing how you guys are doing...you guys are tough cookies. Your family and obiously Evan are in my thoughts. Thank you so much for the updates and keeping us in touch with what is going on. Seizure eradication, here we come!!!!!!! besitos to the family and Evan
Lisa --
Sorry the timing did not work to give you a hug too --Aria and Grandma Mabel were great road trip companions. You can reap your revenge once everyone is home for the sorry that new annoying game Aria knows now :) and umnn well, the kids picked out the toucan that mimics EVERYTHING YOU SAY --Aria decided Evan would love it while he is stuck in bed and while I should have shown some grown -up restraint, your daughter was just too excited and sweet about seeing her brother!! Keep the faith. Beth
L&R,
I thought you'd get a kick out of this. From the day we told Grant that Evan was getting an operation, he has wanted to have someone else to sleep with. Tonight he told me that he wished he were a twin so he could have a brother in the room. When I asked what would be the name of his twin, he said "Evan." Tell Grant's "twin" that Grant is thinking of him.
It's true, I'm forever the optimist, I'm not really allowing anything but complete success in my mind, so that's just how things will have to go! Luckily, I think Dr. Weiner is up to the challenge.
Lisa
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