December 31, 2008

Goodby 2008...Hello 2009!!

Happy New Year!!!

I can't believe it's the last day of December -- where did the year go? For our family, this year closes with so much to reflect on and be thankful for. We celebrated the one year anniversary of Evan's brain surgery and our lives are so different and our hopes for Evan's future have significantly changed. Without the burden of daily seizures, he has many more opportunities for independence from our watchful eyes and he can run around and cause havoc without me trailing him quite so closely. He looks like a different child too: no more dark circles under his eyes from poor sleep due to seizures and his visual focus is more in the moment than wandering off somewhere.

Aria continues to amaze and impress us with her natural sense of empathy and consideration for others. I often said I worried more about how Evan's surgery would effect Aria, but she seems to take everything in stride. Her questions are challenging and we just answer everything as honestly as possible. She's looking forward to our next trip to NYU (more than Evan I'm sure) and always loves being in NY and buying things from the street vendors.

Rob and I are happy and proud of our children and the people they are becoming. Every year just gets better than the one before. Although this year was filled with medical challenges as our whole family recovered from Evan's surgery, I feel like we're closer than ever and have overcome so much.

We are looking forward to 2009 and wish everyone a happy and healthy new year!

December 16, 2008

Dr. Howard Weiner will be on TV!

So if you read this blog you probably already know how much we adore and respect Dr. Weiner. He performed Evan's surgery last year and gave our family the gift of a miracle that will last a lifetime. This is Evan and Dr. Weiner before going into the operating room for the third stage of his surgery...

On Friday, December 19, The Doctors will air a story on TSC featuring the Rolfes family, Dr. Howard Weiner of NYU, and the Hammerquist family. Besides discussing TSC, the segment will focus on the Hammerquist family's son's recent epilepsy surgery. This new show appears at various times across the country, so click here to search local listings. In addition, I heard this will be the show's "holiday giving" episode.