April 22, 2010

One Seizure is Too Many

Yesterday Evan had another seizure and it was a long one. We woke up to him having a seizure and it lasted over five minutes. I really don't like that the length of each seizure is hitting the danger zone every time he has one. The last one was two months ago and was very similar to this one. After the seizure he was tired but popped out of bed when he thought he was going to be late for school and off he went, unfazed by the morning's events.

We spoke with NYU today and are looking at what medication options we have. We'll check his blood levels to see if there is room to increase the medication he's on and also consider adding an additional med. Tomorrow he'll have blood work done before school and the reward (read: bribe) has already been purchased. Pokemon to the rescue!

April 21, 2010

Tracking Evan

Tracking Evan won the Filmmaker Award and the Fan Favorite Award at the American Academy of Neurology's Neurp Film Festival! Congrats to filmmaker, Peter von Elling!!