It looks like we effectively switched Evan's days and nights. He was up until almost 4:00 am and slept until 11:00 am this morning but did not have a seizure. We spent a good portion of the day with a nurse stationed just outside our room and an ominous metal box containing a radioactive isotope sitting near Evan's bed.
Our nurse was ready to jump into action if Evan had a seizure and would have injected the isotope into Evan's IV and scheduled imaging.
Without a seizure, all drama was postponed while we continue to chase Evan's elusive seizures.
At this point we have taken him off all medication and he will stay up until 4:00 am again. We will see what tonight brings.
2 comments:
If feels a little odd to wish you good luck having a seizure. But I mean it in the most positive way. Susan Miranda
Thanks Susan, I know what you mean!
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