We are in the hospital and Evan is hooked up the the Video EEG and enjoying the opportunity to watch all the shows we never let him watch at home. In the hospital, pretty much all rules are out the window!
We left early this morning and Evan had more tunnel vision, threw up twice on the ride up to NY and then slept most of the way to the city. We are really thinking the tunnel vision / vomiting is a toxic reaction to the medication increase, but there is still the issue of the seizures that caused us to increase his meds in the first place.
I snapped this photo with the camera on my phone as we were walking to the hospital and thought it was fitting...
October 07, 2009
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7 comments:
Thinking of all of you, Lisa. Thank you so much for keeping us posted! Evan is a real trooper. I will miss him on Friday!
that is pretty close to perfect picture. we will see you soon.
That's a GREAT picture!
Know that we're thinking of you, too! Glad to know you've got a great team taking care of you there. Did Rob remember that we used to call Chuck "Super Charlie"? Super Moss must run in the genes.
Hugs to all of you!
Great pic..definitely fitting for how strong Evan has been.
Thanks everyone -- he's a real trooper!
Lisa
Just wanted to check out the infamous Super Moss picture - so fitting! Hope you all are doing well at home - only well visits to NYU please! :-)
Can you tell us more about this? I'd love to find out some additional information.
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