We are giving Vigabatrin a good try but haven't seen dramatic results yet and Evan is on John's Hopkins' schedule for the Ketogenic Diet for Feb. 5-8. If the Vigabatrin starts working, we'll cancel this, but as it looks right now, we'll be at John's Hopkins next month.
Basically, they'll admit Evan so they can get him into Ketosis and start the diet. They'll also do some testing and monitoring and he'll spend a total of four days in the hospital. They administer the diet in groups so they can teach several parents how to keep up with the diet in one session. It'll be interesting to meet other families that are going through similar issues, but I don't expect it to be an easy week.
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