November 16, 2007

Evan is Charming the Nurses

Today, I am happy to say, we saw longer glimpses of Evan's true personality. He spent several portions of today flirting with and charming nurses. When he's feeling ok, he's really funny! This morning, at 2am, Evan invited one of the nurses to go on a rocket ride to the Moon, but he told her she needed a space suit first, then he told her it was on backwards! I guess this was her first mission, because she forgot her helmet and then put it on backwards too. After she was suited up they blasted off and visited the Moon and Pluto.

Having Aria here has directly improved Evan's mood and I'm hoping it lasts when she leaves for a few days! She'll be back up here for Thanksgiving, but we don't want her to be here on the day of surgery, it's just too much waiting around.

We spoke with all of Evan's doctors this morning and they are seeing a decent amount of sub-clinical seizures (seizures with no visible signs) on the EEG, and all the seizures are all coming from the area surrounding where the tubers were. This is good because it means Dr. Weiner is getting a lot of clinical data which will help him fine tune what additional tissue needs to be removed. Also, there are no seizures coming from unexpected regions of Evan's brain. After the third surgery they will remove the grids and close everything up. Depending on how quickly Evan bounces back, he'll be moved onto the main pediatric unit. This can happen in just a couple days, but it's different for each person so we'll just have to see how he does. For the moment, Evan's surgery is scheduled for Wednesday, 11/21, but Dr. Weiner is hoping to do it on Tuesday instead. He'll have to go through some negotiations to get OR space, but we're hoping it won't be too hard with the holiday coming up.


Mary said...

This is precious! I'm so glad to hear that Evan likes his nurses well enough to travel the solar system with them! And that having Aria there means so much to him. I know that my relationships with my sibs are so very important to me, and I'm glad your kids have that.

Love to all!

Mama Lisa said...


Yes, when Evan is feeling well he really loves all his nurses. I think it takes a special person to work in PICU and we are fortunate to have all these wonderful people helping Evan (and us) get through this.


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