March 17, 2006

Lots of info today

Today was a whirlwind of information but this seems to turning into our norm--if you ever hear of a tropical storm named Evan, watch out!!

This morning Dr. Chang called us back after having taken Evan's MRI films to her neurology meeting at Children's Hospital in DC and I'm not sure if it's good news or bad news when a room full of neurologists all agree that our child is a surgical candidate and feel strongly about a surgical consult. Basically, the neurologist determines if a child should have surgery and they send patients for a consult, so this is pretty huge.

After talking to Dr. Chang, she got very busy and scheduled an appointment with Dr. Derek Bruce (neurosurgeon with Children's), and arranged for Evan to have a more recent MRI and a routine EEG (not the hellish week-long video one). She feels that if we go the surgical route, we should have it done before the end of the year, so she wants to move fast.

We feel fine about doing additional testing and talking to a surgeon in DC but still have a strong interest in Johns Hopkins. After our conversation I called Johns Hopkins back to see about getting in sooner and they had a cancellation for Tuesday so we're going there in just a few days to meet with Dr. Vining. It'll be interesting to see if they feel the same sense of urgency.

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