August 03, 2013

Traveling to Houston

As we begin the process of having Evan evaluated for a potential brain surgery we    have become increasingly more interested in a new surgical technique using an MRI-guided laser. We are on our way to Texas Children's Hopstal in Houston to explore this as a possibility for Evan.

It's a long trip, but we decided to drive to Texas, mainly because we don't know how long we will be in Houston. They have scheduled a 7-day Video EEG, SPECT Scan, PET Scan, MRI and fMRI. It's a pretty full work up and should give the docs a lot of info. When Evan is in the hospital we will hope for seizure activity so they will be able to determine where the seizures are starting. This always feels like a warped thing to wish for! 

Evan is due to have a seizure soon and according to his trend, it could be tomorrow -- the day before he us admitted to the hospital! We are hoping that won't happen and have a plan to nudge him all night long for the next two nights so his body won't get to the sleep cycle where he has a seizure. This is a crazy plan, unless it works!

No comments: