January 12, 2007
Vigabatrin *MIGHT* be Working
Every time we start a new drug, I put in an entry into this blog saying that it might be working, and Vigabatrin is no different. We've seen a definite decrease in seizures and now we are waiting to see if they continue to decrease or not. If the seizures don't stop completely the question becomes, how many seizures are we willing to accept to keep Evan on a drug that has the potential side effect of permanent peripheral vision loss. That sounds so dramatic! We're hoping they stop completely, but we'll see. Evan actually had three days without seizures this month so far and that hasn't happened since October, so we do have reason to be hopeful. He has gone from 1-4 seizures a day to 0-2 seizures a day which gives us some hope.