February 19, 2009

Congressional Lobbying Effort

We are joining the lobbying effort for TSC research funds again this year and are hoping for another successful outcome! Last Fall Rob was lucky enough to sit on the panel that reviews the research grants submitted and got to see all the incredible programs being funded to search for better treatments and a cure for TSC.

There are some really brilliant minds working toward these goals and I am thankful for their dedication and commitment.

There are only a few days to go before we hit Capitol Hill and start making the rounds with the Virginia representatives. We are double-booked with appointments but we'll make it all work out!
We'll be bringing with us a collection of personal stories from Virginia families and the TS Alliance will be bringing a petition. If you want to help, please consider signing the petition...

http://www.ipetitions.com/petition/tuberous_sclerosis/index.html

There are almost 5000 signatures already!

1 comment:

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