We have dutifully increased Evan's Vigabatrin every week, but there is no downward trend in seizure activity, so it's time to begin the process of weaning him off of it. Each drug wean comes with a note of sadness. It means that this medicine doesn't work for him and with each failed drug, the chance of a different drug working decreases.
Now the big question...what is the next step? We can try another drug, but the chance of anything working is very slim so we'll probably try the Ketogenic Diet first. We will start the diet through Johns Hopkins and their schedule for April is full and we can't do it in May, so I guess we're looking at June. That gives us 2 months to eat all the carbs and sugar in the house!